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MASSACHUSETTS NURSE NEWSLETTER
:: March 2006
Fighting a silent epidemic: the Hepatitis
C Coalition
As health professionals, you know the importance
of access to reliable and quality services for addressing communicable
diseases. We, at the Hepatitis C Coalition, are concerned with improving
services for consumers with this often symptom-less liver disease.
The Massachusetts Hepatitis C coalition brings together providers
and consumers to work to increase awareness of Hepatitis C and support
programs through education, advocacy and coalition building. With
the help of nurses such as you, the coalition can take a more powerful
stance in protecting the commonwealth from this unnecessary and
preventable illness.
Virus can 'hide' for up to 30 years
Because a person can live 10, 20 or even 30 years without knowing
the hepatitis C virus is in their body, much damage can be done
during that time and a person can transmit the disease to others.
Due to insufficient harm reduction services and other factors, in
2004, 10,127 newly diagnosed cases of hepatitis C were reported
to the Massachusetts Department of Public Health. And with severe
budget cuts to public health since 2003, services for infected people
have sharply decreased.
The coalition knows the challenges we as a health-oriented organization
face. But, together, we use our experiences as consumers and providers
to increase the knowledge of hepatitis C within our communities
and the legislature and use advocacy to fight for needed programs
and services.
One of the coalition’s top advocacy efforts has been to support
the Pharmacy Access Bill, H.1476. This bill will make it legal for
pharmacists to sell syringes without a prescription. With increased
access to clean syringes, the incidence of hepatitis C will decrease.
This is certain as 80-90 percent of all IV drug users are infected
with hepatitis C due to sharing dirty needles. The bill passed the
House of Representatives and is now posed for a vote in the Senate.
Please call your senator in support of this bill. To find out who
your senator is visit www.WhereDoIVoteMA.com.
DPH funding for hepatitis C
We also are working full speed ahead in advocating for the hepatitis
C line item (4513-1114) in the fiscal year 2007 state budget. A
new fact sheet has been developed and we are scheduling meetings
with legislators to share our stories and the importance of increasing
funds for hepatitis C programs within the Department of Public Health.
If you would like to meet with your own representative or senator
to talk about hepatitis C funding, please contact Jenny Nathans
at the coalition for materials and more information.
We also ask that you make a phone call to your state representative
and senator and urge them to support funding the hepatitis C line
item at $2,505,000 in FY07, and to convey their support to the Chairman
of the House Ways and Means Committee. In the current fiscal year,
the line item is funded at $562,876 (down 80 percent since 2002),
which has meant the demise of many services. The governor just released
his budget recommendations for next fiscal year and he has kept
funding at this same level. Without increased funding there can
be little improvement to services. The coalition can send you fact
sheets, which may be help when you talk to your representative.
The coalition also provides educational opportunities through guest
speakers and evening events.
We welcome members of MNA to join the coalition and bring your own
expertise to the advocacy arena. Advocacy can be as simple as making
a phone call, writing a letter or attending a meeting. Membership
is free and meetings are held monthly around the state. If you would
like to join the coalition’s email list contact Jenny Nathans
at 617.524.6696, x112 or at jennynathans@mphaweb.org.
Hepatitis C: A silent epidemic
in Massachusetts
Background
Hepatitis C is a life-threatening, viral illness that
is transmitted through blood-to-blood contact by the
hepatitis C virus (HCV). Hepatitis C may not show symptoms
for many years. As a result, this infectious disease
may be transmitted unknowingly. It impairs the liver
by destroying liver cells and leads to cirrhosis, cancer
and death. The liver is the largest human organ responsible
for over 500 bodily functions such as digestion, metabolism,
hormones and detoxification.
The problem
It is estimated that over 100,000 people in Massachusetts
are living with hepatitis C. In 2004, 10,127 people
were newly diagnosed, according to the Department of
Public Health. Between 1994 and 2004, reported cases
increased by 663 percent in the commonwealth.
In 2003, approximately 12,000 people in the United States
died from HCV. The CDC projects that by the end of the
decade hepatitis C will kill more people in the US than
AIDS.
Funding for hepatitis C programs in the commonwealth
has been cut by 80 percent since FY02, leading to unnecessary
and preventable illness. In FY06, the funding level
was $562,876 and in FY04 there was no separate line
item for hepatitis C. It was nested within HIV. In FY07,
the governor has level funded it at $562,876.
A Solution
Fund hepatitis C programs (state budget line item 4513-1114)
at $2,505,000. Make it possible for the Department of
Public Health to address hepatitis C aggressively through:
- Increasing State Laboratory services
that test for the presence and status of a disease
in a patient.
- Expanding counseling and testing
services at community health centers for all hepatitis
C patients.
- Standardized educational and training
efforts for health care and social service providers
and the general public.
- Quality, regional case management
services for all infected people.
- Improved surveillance of hepatitis
C to assess state needs.
How you can help
- Commit to the Hepatitis C Coalition
your support in funding hepatitis C programs at $2,505,000
in FY07.
- Communicate this support and budget
priority to Chairman of the House Committee on Ways
and Means, Rep. Robert DeLeo, State House, Room 243,
Boston, MA 02133. 617.722.2990.
National data on hepatitis C
Groups at risk
Those who are infected with hepatitis C are often those
least able to get adequate care:
- 80-90 percent of intravenous drug
users are infected
- 15-30 percent of those infected
with HIV
- 22 percent of the homeless
- 15 percent of those incarcerated
- 7 percent of veterans
- 3 percent of health care workers
Projected societal costs, 2010-2019
- 193,100 hepatitis C-related deaths.
- $10.7 billion in direct medical
expenditures.
- $21.3 and $54.2 billion in societal
costs, respectively, from premature disability and
mortality in people under 65 years of age.
*Sources: France Foundation Phoenix,
2005 and Mass. Dept. of Public Health
For more information, contact:
Jenny Nathans
617.524.6696, x112
jennynathans@mphaweb.org
Mass. Hepatitis C Coalition
c/o Massachusetts Public Health Assn.
434 Jamaicaway
Jamaica Plain, MA 02130
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